Electronic Theses and Dissertation

PROGRAM STUDI MAGISTER KESEHATAN MASYARAKAT
FAKULTAS KEDOKTERAN UNIVERSITAS SYIAH KUALA

Tesis, 7 Mei 2025

Studi Fenomenologi Pengalaman Penderita Hiv Terhadap Perawatan, Dukungan Dan Pengobatan (Pdp) Di Kota Banda Aceh

132 Halaman + 3 Tabel + 15 Gambar + 7 Lampiran

ABSTRAK

Latar Belakang: Infeksi HIV menimbulkan dampak multidimensi, baik secara fisik maupun psikososial. Layanan Perawatan, Dukungan, dan Pengobatan (PDP) hadir sebagai pendekatan holistik untuk mendukung kualitas hidup orang dengan HIV/AIDS (ODHA). Namun, efektivitasnya sangat bergantung pada pengalaman langsung para penderita dalam mengakses dan menjalani layanan tersebut. Tujuan: Penelitian ini bertujuan untuk mengidentifikasi dan memahami pengalaman ODHA dalam menerima perawatan PDP, dukungan sosial dan emosional, serta proses menjalani pengobatan di Kota Banda Aceh. Metode: Penelitian ini menggunakan pendekatan kualitatif dengan desain fenomenologi. Delapan informan dipilih secara purposive. Data dikumpulkan melalui wawancara mendalam dan dianalisis secara tematik dengan bantuan perangkat lunak NVivo 12. Hasil: Penelitian ini mengungkap bahwa sebagian besar penderita HIV merasakan manfaat dari layanan PDP, terutama dalam hal akses pengobatan dan perhatian dari tenaga kesehatan. Namun, kendala masih dirasakan, seperti prosedur administratif yang rumit, antrean panjang, dan keterbatasan fasilitas. Dukungan emosional dan sosial dari keluarga, petugas kesehatan, serta komunitas terbukti memainkan peran penting dalam menjaga motivasi dan kepatuhan dalam menjalani terapi. Di sisi lain, tantangan seperti efek samping obat, ketakutan terhadap pelanggaran kerahasiaan status, serta tekanan sosial akibat stigma tetap menjadi hambatan psikologis yang signifikan. Kesimpulan: Layanan PDP perlu dikembangkan secara lebih empatik, holistik, dan responsif terhadap kebutuhan individual ODHA. Penguatan komunikasi, jaminan kerahasiaan, dan dukungan psikososial berkelanjutan merupakan elemen kunci dalam meningkatkan efektivitas layanan dan kualitas hidup penderita HIV di Kota Banda Aceh.

Kata Kunci: HIV, pengalaman penderita, layanan PDP, dukungan sosial, pengobatan ARV, fenomenologi
Daftar Pustaka : 25 Buku + 19 Jurnal Penelitian (2017 - 2024)

MASTER OF PUBLIC HEALTH STUDI PROGRAM FACULTY OF MEDICINE SYIAH KUALA UNIVERSITY Thesis, 7 May 2025 A Phenomenological Study of the Experiences of People Living with HIV in Accessing Care, Support, and Treatment Services in Banda Aceh 132 Pages + 3 Tables + 15 Figures + 7 Appendices ABSTRACT Background: HIV infection causes multidimensional impacts, affecting both physical health and psychosocial well-being. The Care, Support, and Treatment (PDP) service is a holistic approach aimed at improving the quality of life for people living with HIV/AIDS (PLWHA). However, the effectiveness of this service is closely tied to the lived experiences of patients in accessing and undergoing treatment. Objective: This study aims to identify and understand the experiences of PLWHA in receiving PDP care, obtaining social and emotional support, and undergoing antiretroviral treatment in Banda Aceh. Methods: This research employed a qualitative approach with a phenomenological design. Eight informants were purposively selected. Data were collected through in-depth interviews and thematically analyzed using NVivo 12 software. Results: The findings reveal that most PLWHA felt supported by the availability of treatment and the attentiveness of healthcare workers. However, they also faced obstacles such as complex administrative procedures, long queues, and limited facility infrastructure. Emotional and social support from family, healthcare personnel, and the surrounding community played a crucial role in encouraging treatment adherence and maintaining motivation. Despite this, several informants experienced challenges, including drug side effects, fear of confidentiality breaches, and ongoing social stigma, all of which contributed to psychological stress. Nonetheless, they remained committed to continuing their therapy. Conclusion: PDP services must be developed with a more empathetic, holistic, and patient-centered approach. Strengthening communication, ensuring confidentiality, and sustaining psychosocial support are essential components in improving service effectiveness and the overall well-being of PLWHA in Banda Aceh. Keywords: HIV, patient experience, PDP service, social support, ARV treatment, phenomenology References: 25 Books + 19 Research Journals (2017–2024)